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Turning Anger Into Action: Minority Students Analyze COVID Data on Racial Disparities

(Ada Yokota/Getty Images)

As the coronavirus swept into Detroit this spring, Wayne State University junior Skye Taylor noticed something striking. On social media, many of her fellow Black classmates who live or grew up in the city were 鈥減osting about death, like, 鈥極h, I lost this family member to COVID-19,鈥欌 said Taylor.

The picture was different in Beverly Hills, a mostly white suburb 20 miles away. 鈥淧eople I went to high school with aren鈥檛 posting anything like that,鈥 Taylor said. 鈥淭hey鈥檙e doing well, their family is doing OK. And even the ones whose family members have caught it, they鈥檙e still alive.鈥

How do COVID-19 infection rates and outcomes differ between these ZIP codes? she wondered. How do their hospitals and other resources compare? This summer, as part of an developed by San Francisco researchers and funded by the National Institutes of Health, Taylor will look at that question and other effects of the pandemic. She鈥檚 one of 70 participants from backgrounds underrepresented in science who are learning basic coding and data analysis methods to explore disparity issues.

Data to address racial discrepancies in care and outcomes has been spotty during the pandemic, and it isn鈥檛 available for most of these students’ communities, which . The participants are 鈥渁sking questions from a perspective that we desperately need, because their voices aren鈥檛 really there in the scientific community,鈥 said , who directs the division of training, workforce development and diversity at the National Institute of General Medical Sciences.

Wayne State University student Skye Taylor wants to take a closer look at how mental health issues affect susceptibility to COVID-19 鈥 鈥渆specially in the Black community, because mental health isn鈥檛 really talked about,鈥 she says. (Joy Taylor)

Scientists from Black, Hispanic, Native American and other minority backgrounds have long been underrepresented in biomedicine. By some measures, efforts to diversify the field have made progress: The number of these minorities who earned life science doctoral degrees. But this increase in Ph.D.s has not moved the needle at the faculty level.

Instead, the number of minority assistant professors in these fields has dipped in recent years, from 347 in 2005 to 341 in 2013. And some of those who have entered public health in the workplace 鈥 or, after years in a toxic environment, quietly leave.

鈥淲e really need to focus on making sure people are supported and find academic and research jobs sufficiently desirable that they choose to stay,鈥 said Gammie. 鈥淭here have been improvements, but we still have a long way to go.鈥

In 2014, the NIH launched the initiative. It offers grants to 10 undergraduate campuses that partner with scores of other institutions researching how to get poor and minority students to pursue biomedical careers.

Students in the program receive stipends and typically spend summers working in research labs. But when COVID-19 hit, many labs and their experiments shut down. 鈥淧eople were like, what do we do? How do we do that remotely?鈥 said biologist , who heads the initiative鈥檚 team at San Francisco State University.

She and University of California-San Francisco epidemiologist sketched out a plan for students to work remotely with bioinformatics, population health and epidemiology researchers to collect and analyze COVID-19 data for marginalized populations.

Gammie encouraged the Bay Area team to expand the summer opportunity to participants across the nation. From June 22 to Aug. 13, students spend two to three hours online four days a week in small groups led by master鈥檚-level mentors. They learn basic bioinformatics 鈥 computational methods for analyzing biological and population health data 鈥 and R, a common statistical programming language, to collect and analyze data from public data sets. 鈥淚 think of basic bioinformatics and R coding as an empowerment tool,鈥 said Mehta. 鈥淭hey鈥檙e going to become change agents in their communities, fighting back with data.鈥

Niquo Ceberio recently earned a master鈥檚 in biology at San Francisco State University and is leading a team of mentors in a summer program to help college students explore COVID-19鈥檚 impact on communities facing health disparities. (Julio Ceberio) / After spending much of her childhood in foster care, psychology major Willow Weibel is studying how COVID-19 restrictions affect the mental health of former foster youth and other young adults with traumatic backgrounds. (Le Anna Jacobson)

Bench science often takes years, whereas data crunching to solve problems offers a sense of immediacy, said Niquo Ceberio, who recently earned a master鈥檚 in biology at SFSU and leads the team of mentors. 鈥淭here was this sort of limitlessness about it that really appealed to me,鈥 she said.

Raymundo Aragonez, a University of Texas-El Paso biology major participating in the summer program, sees data analysis as a way to address confusion in the Hispanic community 鈥 including some of his family members who think the pandemic 鈥渋s all a hoax.鈥 Dismayed by misleading YouTube videos and rampant misinformation shared on social media, Aragonez, who aims to be the first in his family to finish college, said he hopes to gain skills to 鈥渦nderstand the data and how infections are actually happening, so I can explain it to my family.鈥

He hopes to explore whether COVID-19 infection rates differ among people living in El Paso, those living in the Mexican city of Ju谩rez, and those who frequently cross the

University of Texas-El Paso biology major Raymundo Aragonez sees data analysis as a way to address COVID confusion in the Hispanic community. He鈥檚 one of about 70 college students participating in a summer program funded by the National Institutes of Health, aimed at exploring the virus鈥檚 impact on communities facing health disparities. (Miriam Aragonez)

border between the cities 鈥 like many of his friends and classmates.

Willow Weibel, an SFSU psychology major, is studying how COVID-19 restrictions affect the mental health of former foster youth and other young adults with traumatic backgrounds. Weibel spent much of her childhood in foster care before getting adopted into a Southern California family at age 17. 鈥淚鈥檝e grown to really care about what other people go through in the system,鈥 she said.

Mental health is a common thread in the research questions proposed by several students in Weibel鈥檚 group, including Skye Taylor, who is majoring in psychology with a minor in public health. While curious about disparities in Detroit-area COVID-19 outcomes, she also wants to examine how mental health issues affect COVID-19 susceptibility 鈥 鈥渆specially in the Black community, because mental health isn鈥檛 really talked about,鈥 she said.

Having the chance to explore their own research questions is unusual for undergraduates, and particularly meaningful to students of color. 鈥淚t feels like science is something that鈥檚 been done to us or on us,鈥 said Ceberio, who is Black and Latina, and grew up in Los Angeles, Miami and Las Vegas before moving to the Bay Area. 鈥淭his experience allows them to do research that they feel is relevant based on the way they鈥檙e viewing the world. I鈥檓 trying to get them to trust their instincts.鈥

Trainees from underrepresented groups will more likely stay in biomedicine if they feel they are giving back to their communities or doing something with a tangible purpose, said Gammie. This summer, participants 鈥渉ave an opportunity to engage in science that does both,鈥 she said. 鈥淥ur hope is that this will inspire students to go on to be independent scientists.鈥

Related Topics

California COVID-19 Mental Health Public Health Race and Health States