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Navigating Aging

Life Beyond COVID Seclusion: Seniors See Challenges And Change Ahead

Many older adults follow strict precautions to protect themselves from the coronavirus. The 鈥渘ew normal鈥 鈥 for those 65 and older 鈥 is a very different and fearful social order. Top row (from left): Willetha and Harold Barnette, Vicki Ellner, Richard Chady. Center row (from left): Patricia Griffin, Wilma Jenkins, Annis Pratt. Bottom row (from left): Ed and Marian Hollingsworth, Harry Hutson, Edward Mosely. (Courtesy of participants)

Months into the coronavirus pandemic, older adults are having a hard time envisioning their 鈥渘ew normal.鈥

Many remain fearful of catching the virus and plan to follow strict precautions 鈥 social distancing, wearing masks and gloves, limiting excursions to public places 鈥 for the indefinite future.

Mortality is no longer an abstraction for those who have seen friends and relatives die of COVID-19. Death has an immediate presence as never before.

Many people are grieving the loss of their old lives and would love nothing better than to pick up where they left off. Others are convinced their lives will never be the same.

鈥淲e鈥檙e at the cusp of a new world,鈥 said Harry Hutson, 72, an organizational consultant and executive coach who lives in Baltimore.

He鈥檚 among nearly a dozen older adults who discussed the 鈥渘ew normal鈥 in lengthy conversations. All acknowledged their vulnerability as states across the country lift stay-at-home orders. (Adults 65 and older are more likely to become critically ill if infected with the coronavirus.) Here鈥檚 some of what they said:

(Courtesy of Willetha and Harold Barnette)

Willetha, 67, and Harold, 68, Barnette, of Durham, North Carolina. The Barnettes are an unusual couple: They divorced in 1995 but began living together again in 2014 when both Willetha and her elderly mother became ill and Harold returned to help.

For Willetha, who has Crohn鈥檚 disease and is immunocompromised, the 鈥渘ew normal鈥 is characterized by vigilance 鈥 masks, gloves, disinfectants, social distancing, working remotely (she鈥檚 a development officer at a school).

鈥淚鈥檓 not going to be comfortable freely moving around this world until they鈥檙e able to do reliable antibody testing and there is a vaccine,鈥 she said. 鈥淩ight now, I think we all have to learn to live smaller.鈥

Harold believes that self-reliance and local support networks are more important than ever. 鈥淭o me, the pandemic reveals troubling things about the state of institutions in our society. The elder care system is rotten and the health care system full of neglect,鈥 he said.

鈥淚鈥檓 preparing myself for a different social order. I鈥檓 thinking that will be built on relationships with family and people near to us and we鈥檒l all be helping each other out more.鈥

(Courtesy of Patricia Griffin)

Patricia Griffin, 80, of Oxford, Pennsylvania. Griffin is a retired microbiologist who lives alone in a continuing care community and loves to travel. In March, as the coronavirus pandemic gathered steam, she was due to take a trip to the Amazon, which was canceled.

鈥淚 envision conditions for seniors being restrictive until we have a vaccine,鈥 Griffin said. 鈥淭hat makes me angry because I don鈥檛 have that many years left. And I would like to do the things I want to do. At the moment, I鈥檓 leaning toward being cautious but not being completely a prisoner.鈥

A big frustration for Griffin is the lack of clear guidance for healthy older adults like her who do not have underlying medical conditions. 鈥淎ll we see are statistics that lump all of us together, the healthy with those that have multiple issues,鈥 she said. I鈥檓 wondering what my odds of getting really sick from this virus are.鈥

(Courtesy of Wilma Jenkins)

Wilma Jenkins, 82, of South Fulton, Georgia. Jenkins, who has coped with depression most of her life and describes herself as an introvert, lives alone in a small house just outside Atlanta.

鈥淚 confess I鈥檓 going to be afraid for a while,鈥 she said.

During the pandemic, her three adult children and grandchildren have created a new tradition: Zoom meetings every Sunday afternoon. Previously, the entire family got together once a year, at Thanksgiving. 鈥淚t helps me a lot, and I think it will last because we have so much fun,鈥 Jenkins said.

Before her life ground to a halt, Jenkins regularly gave presentations at senior centers across Atlanta on what it鈥檚 like to grow old. 鈥淢y work is helping little old people like me,鈥 she said, 鈥渁nd when I can get out again, I鈥檒l be reminding them that we have reached a point when we can wear the crown of age and we should be doing that proudly.鈥

(Courtesy of Ed and Marian Hollingsworth)

Marian and Ed Hollingsworth, 66 and 72, of La Mesa, California. Ed has a rare gastrointestinal cancer and is enrolled in a clinical trial of a new drug.

鈥淢y vision of the future is somewhat limited, given my age and my prognosis,鈥 he said. 鈥淭here鈥檚 a constant fear and uncertainty. I don鈥檛 see that changing anytime soon. We鈥檒l be in the house a lot, cooking a lot, watching a lot of Netflix.鈥

鈥淚鈥檓 looking at least a year or two of taking strong precautions,鈥 said Marian, a patient safety advocate.

鈥淚 always was the person who was active and doing for others: Now I鈥檓 the one at home having to ask for help, and it feels so foreign,鈥 she said. Her most immediate heartache: 鈥淲e don鈥檛 know when we鈥檒l see our [four] kids again.鈥

(Courtesy of Richard Chady)

Richard Chady, 75, of Chapel Hill, North Carolina. Chady, a former journalist and public relations professional, lives in a retirement community and participates in the North Carolina Coalition on Aging.

鈥淭his pandemic has given me a greater appreciation of how precious family and friends are,鈥 he said. 鈥淚 think it will cause older people to examine their lives and their purpose a little more carefully.鈥

Chady is optimistic about the future. 鈥淚鈥檝e been involved in progressive causes for a long time and I think we have a great opportunity now. With all that鈥檚 happened, there鈥檚 more acceptance of the idea that we need to do more to improve people鈥檚 lives.鈥

(Courtesy of Edward Mosley)

Edward Mosley, 62, of Atlanta. Mosley lives alone in Big Bethel Village, an affordable senior housing community. Disabled by serious heart disease, he relies on Supplemental Security Income and Medicaid. In the past year, he has had multiple hospitalizations.

鈥淭he pandemic, it affected me because they canceled my doctors鈥 appointments and I was in a bad way,鈥 said Mosley, who had a pacemaker implanted in his chest before COVID-19 emerged. 鈥淏ut I鈥檓 doing better now. I can walk with a cane, though not very far.鈥

The hardest thing for Mosley is not being able to mingle with other people 鈥渂ecause you don鈥檛 know where they鈥檝e been or who they鈥檝e been with. You feel like you鈥檙e in solitary confinement.鈥

(Courtesy of Vicki Ellner)

Vicki Ellner, 68, of Glenwood Landing, New York. Ellner ran Senior Umbrella Network of Brooklyn for 20 years. Today she works as a consultant for an elder care attorney on Long Island.

Before the coronavirus upended life in and around New York City, Ellner and the attorney were planning to launch an initiative aimed at older women. Now, they鈥檝e broadened it to include older men and address issues raised during the pandemic. The theme: 鈥淵ou鈥檙e not done yet.鈥

Ellner explains it this way: 鈥淢aybe you were on a path and had a vision of your life in mind. Then all of a sudden you have these challenges. Maybe you lost your job, or maybe things have happened in your family. What we want to help people understand is you鈥檙e not done yet. You still have the ability to redirect your life.鈥

In her personal life, Ellner, who lives with a 鈥渟ignificant other,鈥 is determined to keep fear at bay. 鈥淲e tell ourselves we鈥檙e doing everything we can to stay vital and get through this. We try to turn that into a positive.鈥

(Courtesy of Harry Hutson)

Harry Hutson, 72, of Baltimore. Hutson, an organizational consultant and executive coach, is married and has five grown children. He believes 鈥渁n enormous change in lifestyle鈥 is occurring because of the pandemic.

鈥淲e鈥檙e all more careful, but we鈥檙e also more connected,鈥 he said. 鈥淥lder friends are coming out of the woodwork. Everyone is Zooming and making calls. People are more open and vulnerable and willing to share than before. We鈥檙e all trying to make meaning of this new world.鈥

鈥淲e鈥檙e all having a traumatic experience 鈥 an experience of collective trauma,鈥 Hutson said. As the future unfolds, 鈥渢he main thing is self-care and compassion. That鈥檚 the way forward for all of us.鈥

(Courtesy of Annis Pratt)

Annis Pratt, 83, of Birmingham, Michigan. A retired English professor, novelist and environmental activist, Pratt lives alone in a home in suburban Detroit.

鈥淲hat I鈥檓 looking forward to is getting back to interacting with real people. Much of my human contact now is on Zoom, which I consider about 75% of a personal encounter,鈥 she said. 鈥淏ut every day, I make myself go out and talk to someone 鈥 like taking a vitamin pill.鈥

Pratt now has a 鈥渄o not put me on a ventilator鈥 order in her front hallway, along with a 鈥渄o not resuscitate鈥 order. 鈥淚 know it鈥檚 very likely that if I get to the point where I have to go to the hospital, I鈥檒l probably die,鈥 she said. 鈥淥f course, I鈥檓 going to die anyway: I鈥檓 83. But somehow, this pandemic has brought it all home.鈥

Going forward, Pratt sees two possibilities. 鈥淥ur moral imaginations will have grown because of what we鈥檝e all gone through and we will do better. Or nothing will have changed.鈥

Most of all, she said, 鈥淚 would like to get my wonderful, wonderful life back.鈥

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